Additional Patient Resources
Support comes in many forms and from many places.
The Nephrotic Syndrome Foundation works continuously to be a resource for families in this journey. Below we have assembled some helpful links, tips and outside resources across various topics related to Nephrotic Syndrome:
Clinical Trial Resources - where to find current clinical trials for your child
We are in unprecedented times with the spread of COVID-19. It is a particularly trying time for those caring for a child with Nephrotic Syndrome. Our hearts and prayers are with each of you, as well as those on the front line of this crisis as healthcare workers, first responders and their families.
We have assembled a few resources that may be helpful during this time:
NSF's Finding Health Series
Don't forget to check topics covered in NSF's Finding Health Series.
In addition to the support we provide, The Nephrotic Syndrome Foundation strives to extend our reach by identifying partner organizations who may provide support and/or services to those battling Nephrotic Syndrome. These partnerships allow us to provide patient families the greatest level of support available.
There with Care Bay Area is a local organization dedicated to providing individualized support to help children and families during the critical phase of a medical crisis. Currently, they support families referred to them by hospital social workers at Lucile Packard Children’s Hospital Stanford and UCSF Benioff Children’s Hospital. For more information, see their website at: and / or contact the social worker at your child's hospital.