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Past Events & Photos

NSF Peer Team: CONNECTIONS

June 22nd - Virtual

NSF's Connections program gives younger patients (13 and under) an opportunity to have some fun while connecting with others who walk the same path.

Learn More!

Finding Health: Nutrition and Kidney-Friendly Eating

June 3rd - Virtual

Thank you to everyone who attended! Together we learned, were inspired, and walked away with a new appreciation for eating with kidney health and Nephrotic Syndrome in mind. This session included a special presentation from Kellsey Reed (RDN, LDN), a Registered Dietitian specializing in Chronic Kidney Disease.

Learn More!

4th Annual Bourbon Brews & BBQ Festival

June 1st - Shepherdsville City Park, KY

Thank you to all who attended this event and supporting NSF. This wonderful event included local vendors, a beer garden, live music, water slides, bounce houses, a Cornhole tournament, and BBQ contest.

100% of the proceeds from this year’s festival were donated to The Nephrotic Syndrome Foundation!

Day on the Green 2024

May 19th-20th - Diablo, CA

Thank you to everyone you joined us and supported Day on the Green 2024! This event featured an 18-hole golf tournament at Diablo Country Club filled with fun and followed by an outdoor cocktail reception and awards ceremony where we continued the festivities in support of those in this battle. Plus enjoyed a silent and live auction, raffle and MORE!

100% of the proceeds benefited children battling Nephrotic Syndrome and their families.

 
Event Photos:
Day on the Green 2024 - Studio One Photos (Tournament)
Day on the Green 2024 - Carly Marks Photos (Reception)

Thermometer Wrapping and Packing Event

April 27th - Danville, CA

Thank you to all who joined us at CPC Danville as we gift wrapped, decorated and prepared thermometers to be shipped to new patient families!

Through our Thermometer Program, The Nephrotic Syndrome Foundation provides a hospital-grade thermometer to patient families with a child battling Nephrotic Syndrome - a significant benefit to anyone dealing with an immunosuppressed child.  Each thermometer is valued at over $300.


Learn More!

Finding Health: New Research and Treatment Strategies for Nephrotic Syndrome

April 23rd - Virtual

At this session we connected with four of the leading Pediatric Nephrologists and Researchers in the Nephrotic Syndrome field as they presented their latest research, studies, and / or  strategies. NSF was honored to be joined by Dr. Christine Sethna (Sethna Research Group), Dr. Amar Majmundar (Boston Children’s Hospital), Dr. Gabriel Cara-Fuentes (Nationwide Children's Hospital), and Dr. Matt Sampson (Sampson Lab).

Click Here for Session Resources

Backpacks of Hope Stuffing Event

March 23rd - Danville, CA

Thank you to everyone who joined us as we curated special Backpacks of Hope for 119 young warriors with Nephrotic Syndrome!

Every day we find more kids battling Nephrotic Syndrome without support. Backpacks of Hope offers these families support when needed most. Each Backpack of Hope contains valuable medical supplies, comfort items and educational materials. Each one offering a personal connection to others in the same journey.

Finding Health: Nephrotic Syndrome 101

March 4th - Virtual

In this session we were joined by Dr. Paul Brakeman, UCSF Pediatric Nephrologist as we discussed Nephrotic Syndrome diagnosis, medications, treatments, labs, how to interpret labs, and more.

Click Here for Session Resources

Kidney Awareness Month

March 2024

Help bring awareness to your community! March is National Kidney Month—a time to raise awareness about the importance of kidney health.

Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids, cancer, and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.

Learn More or Support via Donation!


 

We Hope Virtual Meet Up

February 12th - Virtual

As Kidney Awareness Month approaches, we welcomed our community to a casual 'meet up' for those who have an interest in getting involved and spreading awareness! We hosted caregivers, friends and family of young warriors virtually for a discussion.

Learn More about We Hope!

NSF Peer Team: CONNECTIONS

February 10th - Virtual

NSF's Connections program gives younger patients (13 and under) an opportunity to have some fun while connecting with others who walk the same path. Thank you to all who joined us for our "Science Spectacular" 2024 kick-off session!

Have an older teen who wants to get involved? Check out / apply to be part of NSF's Peer Team.

Backpacks of Hope Giving Drive

November & December 2023

Thank you to everyone who contributed to our goal to raise $25,000  to provide Backpacks of Hope to 100 young warriors!! A special thank you to the Quest Foundation for matching the donation amount and our current B.Hope partners: Elisa Wen, Games Unlimited, SPENGA and StretchVibe.

Elisa Wen Shopping Event

December 6th - Danville, CA

Thank you to everyone who joined us locally at this shopping event with our community parter Elisa Wen. A HUGE thank you to Elisa Wen for hosting this fabulous event. 
 
Elisa Wen Boutique is a contemporary fashion lifestyle emporium that caters to the style savvy yet comfort seeking gal. With a store location in Danville, CA, Elisa Wen has earned a reputation for being a Bay Are treasure trove for everything from casual separates to cocktail dresses since 2001. Voted Best of the East Bay by Diablo Magazine several years in a row, Elisa Wen has garnered praise for its carefully edited selection of today's most coveted styles as well as modern classics. In short, there's something for everyone at this chic boutique. 

Thermometer Wrapping Event

December 2nd - Danville, CA

We're so thankful for all who joined us at CPC Danville as we gift wrapped, decorated and prepared 60 thermometers to be shipped to new patient families! 

Through our Thermometer Program, The Nephrotic Syndrome Foundation provides a hospital-grade thermometer to patient families with a child battling Nephrotic Syndrome - a significant benefit to anyone dealing with an immunosuppressed child.  Each thermometer is valued at over $300.

Giving Tuesday 2023

November 28th - Worldwide

Giving Tuesday is a global generosity movement unleashing the power of radical generosity. Giving Tuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity.

Join the movement and give – each Tuesday and every day – whether it’s some of your time, a donation, or the power of your voice in your local community.

Valentines in November

November 28th - Virtual

Thank you to everyone who helped make Valentine's Day cards for our patient community! Together we created special curated cards filled with love and support to share positivity and encouragement for young warriors diagnosed with Nephrotic Syndrome. 

Camp NSF 2023

November 18th - 20th - Livermore, CA

Thank you to all our wonderful NSF community members who assisted in the last minute change with Camp NSF this year. Due to an emergency directive issued by East Bay Regional Parks we unfortunately had to cancel Camp NSF for these dates. We hosted those warriors and their families who were already in town at our founders house for a special time filled with face painting, s'mores, water balloons and more. Thank you to everyone for their flexibility and understanding - we look forward to seeing you at camp in the future. 

Camp Photos!

Khrista Jarvis Team Holiday Sip & Shop

November 7th - Danville, CA

NSF is honored to have been the non-profit beneficiary of the 4th annual Khrista Jarvis Team Sip & Shop! Those who attended were able to kick off their holiday shopping while supporting The Nephrotic Syndrome Foundation. This event featured light bites, signature cocktails, a raffle and more!

A HUGE thank you to our vendors which included: Elisa Wen, South Austin Lane, Apres Soleil, Beyond Active, Amphora Nueva, Rothschilds, M by Maggie, Lina Shatara, Eye for Pretty, Fiamma Candles, BeautyCounter, Gwen Callan Design, Faustine Hom, XO The Blanket, House of Circumstance and more!

Event Photos!

NSF Peer Connections Event: "Fall Fun"

October 14th - Virtual

Younger warriors were invited to join NSF for an interactive, activity-based meet-up led by the incredible NSF Peer Team (older teens and young adults who have traveled this road themselves). This meeting included Fall Fun activities to celebrate the Autumn season. 

Backpacks of Hope Stuffing Event

October 6th - 7th in Danville, CA

Thank you to all who joined us at CPC in Danville, CA at one of our Backpacks of Hope stuffing events where we curated special backpacks to send to young warriors. For more information and future events contact dana@nephroticsyndromefoundation.org.
 
Learn More!

Summer Splash 2023

Sumer 2023

Thank you to all our summer splash 2023 participants! Thanks to you and your creative and impactful events, we met our goal and raised over $11,000, taking FULL advantage of the match opportunity generously provided by the Jonathan and Rae Corr Foundation Summer Splash 2023 resulted in a total impact of over $21,000!!!

Finding Health Session: Vaccinations and Nephrotic Syndrome

September 26th - Virtual

This session focused on the sensitive but important topic of vaccinations alongside nephrotic syndrome. Co-hosted by Dr. Gia Oh, Dr. Dorey Glenn, Dr. Chia-Shi Wang, Dr. Daniele Gusland, and Dr. Paul Brakeman, this presentation included an overview of vaccines, the recommended timing of vaccines along with the concerns for relapse. In addition to addressing previously submitted questions from the attendees, tips and tricks along with various travel / exposure considerations were discussed. The presentation was followed by an open Q&A.

View Session Resources!

Kriste Michelini Interiors Event

September 23rd in Danville, CA 11am to 4pm 

Hosted alongside Kriste Michelini Interiors Event, this local community event of purposeful shopping AND intentional wellness was all for a good cause! Those who attended enjoyed vitamin shots from B12 Love, mini-facials by Beauty Counter, vibrational sound therapy from Reiki Harmony and give-back shopping in support of NSF. Stay tuned for future wellness events!

Finding Health Session: What Parent's Need to Know

September 19th - Virtual

This session included a Peer Team Panel hosted by The NSF Peer Team, young adults and older teams who have experienced life with Nephrotic Syndrome. We were able to hear from this group directly, ask questions, and get insight. Topics included transitioning to middle / high school, new friends, school-life balance, stress, teen life, etc. 100% free & virtual.

View Session Resources!

Oakland A's Patient Family Event

September 17th in Oakland, CA

We came together as a community at the Oakland-Alameda Coliseum for the A's vs. Padres game! Together we enjoyed delicious food & beverages plus experienced on-field opportunities. 

Finding Health Session: Back-to-School

September 5th - Virutal

This series addressed the 504 plan process and navigating school. We shared tips and tools on advocating for kids or teens as they go back to school and need accommodations or support. We reviewed NSF's 504 Plan Toolkit, heard from others who have navigated this slice of life, shared ideas, tools and tips for a smooth return to school and a successful year. Panel included parents, a teacher, and registered RN, school nurse and health educator.

View Session Resources!

Camp NSF

July 21st-23rd in Livermore, CA

Thank you to all our wonderful NSF community members who assisted in the last minute change with Camp NSF this year. Due to an emergency directive issued by East Bay Regional Parks we unfortunately had to cancel Camp NSF for these dates. We hosted those warriors and their families who were already in town at our founders house for a special time filled with face painting, s'mores, water balloons and more. Thank you to everyone for their flexibility and understanding - we look forward to seeing you at camp in the future. 

Joshua's Journey Car Show

July 21st-23rd 

The Shields Family hosted their Annual Joshua's Journey Car Show to raise awareness for Nephrotic Syndrome, a rare kidney condition that affects Joshua. All of the proceeds from this important event went to the Nephrotic Syndrome Foundation to help continue their mission to support kids and families affected by this Nephrotic Syndrome. Thank you to those who supported Joshua's Journey and The Nephrotic Syndrome Foundation! For more info or to inquire about sponsorship opportunities or in-kind donations for next year's event, contactTara Shields at lifelovingrn@gmail.com

3rd Annual Bourbon Brews & BBQ Festival

June 10th 2023

Thank you to everyone who supported the 3rd Annual Bourbon Brews & BBQ Festival in Shepherdsville City Park, Kentucky.
Attendees we able to shop local vendors, hangout in the beer garden and sit back and enjoy the live music! There was a waterslide, dry bounce house, additional gaming activities., Corn hole tournament, and BBQ Contest! 100% of the proceeds from this year’s festival were donated to The Nephrotic Syndrome Foundation.

For information on future events contact thefeltsfamilyfoundation@gmail.com.

NSF Peer Connections Event

June 10th 2023

Start of Summer Fun" Crafts & Fun! NSF's CONNECTIONS Program is an opportunity for young Nephrotic Syndrome warriors, 13 years and younger, who have a desire to support others navigating Nephrotic Syndrome, and who would like to be part of a community for support as well. Siblings 13 years and younger, are also welcome!

We Hope Summer Splash Virtual Meet Up

June 1st 2023

We met virtually with our community to discuss ways to get involved with NSF this Summer. We talked particularly around the theme of a SUMMER SPLASH, our Summer fundraising initiative which encourages our community members to get involved through lemonade stands, bake sales, and other activities. 

Learn More & Get Involved!

Day on the Green 2023

May 22nd 2o23

Thank you to everyone you joined us and supported Day on the Green 2023! This event featured an 18-hole golf tournament at Diablo Country Club filled with fun and followed by an outdoor cocktail reception and awards ceremony where we continued the festivities in support of those in this battle. Plus enjoyed a silent and live auction, raffle and MORE! 100% of the proceeds benefited children battling Nephrotic Syndrome and their families. 

Event Photos!

Reception Photos (Pin 1214)

Day on the Green 2023 - Family Putting Event

May 21st 2o23

Our local community members joined us at Diablo Country Club as we kicked off the fun and games for 2023 Day on the Green! We had kid friendly golf games, a putting contest for the older crew, light snacks, no-host bar, face painters, and the chance to win Disneyland tickets! Thank you to all who came and supported, we look forward to seeing you next year!

Level Up with Laurie & Beyond Active

Sunday, April 23rd at 10AM PST

Laurie is a seasoned fitness instructor who motivates her clients to make their health an unwavering priority. She believes being fit is a lifestyle, and hopes to inspire those who work with her to feel the same. Driven by a true love for helping people develop and build their inherent inner strength, Laurie is here to propel the movement you’ve already started. Let’s go and LEVEL UP together!

Backpacks of Hope Stuffing Events

April 21st / 22nd, and November 2023

Thank you to all who joined us at CPC in Danville, CA at one of our Backpacks of Hope stuffing events where we curated special backpacks to send to young warriors. For more information and future events contact dana@nephroticsyndromefoundation.org.

Learn More!

Thermometer Wrapping and Packing Event

Friday, March 24th @ 5-7pm PST

Thank you to our local Bay Area community that joined us at CPC Danville and took our basic boxed thermometers and transformed them into wrapped, hand-decorated, carefully constructed (with other valuable materials) ready-to-be-shipped packages for our patient community!

Finding Health Session: Rituximab 101

Tuesday, March 21st @ 5:30pm PST

Co-hosted by Dr. Susan Massengill and Dr. Deb Gipson, along with Dr. Paul Brakeman, this session provided an overview of Rituximab: Why/how it is used and administered in the pediatric nephrology community, how it works, use of bio-similars / generics, what to know and look out for before and after, and more. Caregivers/Parents had the opportunity to submit questions ahead of time and in the chat for a detailed Q&A time after the presentation.

NSF Canadian Patient Family Meet Up

Tuesday, March 14th at 9PM EST

Thank you to all who joined us for our casual 'meet up' for those based in Canada. Together we discussed meeting other caregivers, getting involved, spreading awareness or leaning more about NSF! This event was for caregivers, friends or family, or anyone inclined to learn more. 

Peer CONNECTIONS Event

Saturday, March 11th at 10AM PST

Thank you to all who joined us for this interactive, activity based meet-up led by our incredible NSF Peer Team. We had so much fun spending time together and hope you can join us for our next Peer CONNECTIONS event.

ElisaWen Shop-for-a-cause

November 8, 2022

Thank you to all who joined us for our shop-for-a-cause event with the wonderful local boutique - ElisaWen. We shopped their beautiful selection of dresses, jeans, tops, jewelry, bags, gifts and more and got out holiday shopping done while also supporting this years BOH Giving Drive to raise funding in support of NSF's Backpacks of Hope patient program. 

Backpacks of Hope

November 4th & 5th, 2022

Every day we find more kids battling Nephrotic Syndrome, until now, without support. Backpacks of Hope offers each child a backpack full of comfort items, medical supplies and educational materials. Inside is warm blanket, Swell style water bottle, Albustix, over-ear headphones, a gift for the patient and siblings, important educational information and much more. Each is a personal connection to others in the same journey.

Our wonderful volunteers helped us to fill 150 backpacks for young warriors!

Summer Splash 2022

August 2022

Thank you to all who joined us this Summer for our Summer Splash - Love & Lemonade campaign! Every Summer we partner with our wonderful community to get involved in supporting NSF's programs by fundraising. We encourage you to get creative and fundraise with friends through Bake Sales, Lemonade Stands, or any other form of fundraiser you lead!

Peer Team CONNECTIONS

August 20, 2022

Our Peer Team hosted another wonderful CONNECTIONS event virtually for our young warriors age 13 and under that included a fun summer craft activity. Check out our Peer Team page for future events and meetings!

Camp NSF 2022

July 22nd - 24th, 2022

We welcomed our wonderful NSF community back in-person to camp this year! Camp was filled with activities such as swimming, campfire songs, learning about animals, crafts, and MORE. We had an amazing time connecting with the young warriors and their families who attended, and getting to enjoy the beautiful scenery together. Stay tuned for Camp NSF 2023 details, and we hope you can join us next year!

Event Photos!

Backpacks of Hope!

June 24th & 25th

Every day we find more kids battling Nephrotic Syndrome, until now, without support. Backpacks of Hope offers each child a backpack full of comfort items, medical supplies and educational materials. Inside is warm blanket, Swell style water bottle, Albustix, over-ear headphones, a gift for the patient and siblings, important educational information and much more. Each is a personal connection to others in the same journey.


This program would not be possible without the support of our donors, volunteers, and NSF Community. Thank you to all who joined us at our Backpacks of Hope Stuffing Event on June 24th & 25th to help put together these backpacks filled with valuable supplies as well as love and hope as they are hand packed for each young warrior. 

Event Photos!

Peer CONNECTIONS Event

June 11, 2022

Our Peer Team connected with our CONNECTIONS community members age 13 and under for some fun activities, conversations, and opportunity to grow together!

Day on the Green 2022

May 23, 2022

Day on the Green 2022 featured an 18-hole golf tournament at Diablo Country Club filled with fun and followed by an outdoor cocktail reception and awards ceremony where we continued the festivities in support of those in this battle. Plus enjoyed a silent and live auction, raffle and MORE!

100% of the proceeds benefit children battling Nephrotic Syndrome and their families. 

THANK YOU to all who supported Day on the Green 2022!

Tournament Pictures - Studio One Photography
Reception Pictures - Kim Lind Photography (Password: 2022)

Level Up w/ Laurie

March 27, 2022

Thank you to all who joined us for a sweat, sip and shop in support of B.Hope! We teamed up with our B.Hope partner Beyond Active, Level Up with Laurie, Late Night Bakes (to name a few) to bring attendees a fabulously fun morning.
 
We hosted an outdoor, socially distant class with Laurie (10am start), mimosas, sweet treats and more. We had chair massages and energy healing...and shopping! @shopbeyondactive has the BEST activewear and wellness inspired gifts and donated 15% back to B.Hope!
 
Thank you so much for your love and support!

World Kidney Month

March 2022

Every March is World Kidney Month! Join Us as we raise awareness and grow our programs to support patients and families in the Nephrotic Syndrome Community.

NSF Peer Team Mindset Workshop

February 27th, 2022

NSF was honored to collaborate with life coach & kidney transplant recipient Shelby Hansen. Together we hosted a 100% Free and Virtual dedicated wellness workshop just for our Peer Team. Designed specifically for our Nephrotic Syndrome community, Shelby lead a positive, lighthearted session with tools and techniques for living your best life with chronic illness. 

NSF Peer Connections - Valentines Day Virtual Meet Up

February 5th, 2022

NSF's CONNECTIONS Program is an opportunity for young Nephrotic Syndrome warriors, 13 years and younger, who have a desire to support others navigating Nephrotic Syndrome, and who would like to be part of a community for support as well. Siblings 13 years and younger, are also welcome!
 
NSF's CONNECTIONS Program is guided by The NSF Peer Team, a group of young adults and older teens who themselves walk the journey of life with Nephrotic Syndrome. The NSF Peer Team is here to support others battling Nephrotic Syndrome and are passionate about encouraging younger community members to get involved in the NSF community in whatever way suits them. The NSF Peer Team is here to speak with parents, share experiences with young warriors and simply be a part of a collaborative and supportive community.
 
At NSF's first CONNECTIONS event of the year, we did fun Valentine's related games/crafts together!

We Hope Virtual Event

January 27th at 5PM PST

We met together to discuss ways to give back and get involved with NSF as part of the We Hope fundraising program. We got to know each other as we brainstormed ideas for fundraising campaigns and spreading awareness about Nephrotic Syndrome. Several veteran fundraisers joined us to share their experiences and how they got started fundraising to support NSF! Check out our We Hope page to learn how to host an event or fundraiser yourself!

Check it out: link to the  Zoom recording of the meeting 
We Hope Fundraising Summary

 

B.Hope Giving Drive 2021

November 1st - December 31st

Every day we find more kids battling Nephrotic Syndrome, until now, without support. Backpacks of Hope offers each child a backpack full of comfort items, medical supplies and educational materials. Inside is warm blanket, Swell style water bottle, Albustix, over-ear headphones, a gift for the patient and siblings, important educational information and much more. Each is a personal connection to others in the same journey.
 
Each year we host a B.Hope giving drive where we fundraise to support our backpacks of hope program and strive to reach even more families and bring them not only a backpack filled with valuable supplies but also a sense of support, community and hope.

We raise funding to support this program year round, check out our support page to donate!

Sports Basement SnowFest

December 5, 2021

The Nephrotic Syndrome Foundation was the Snowfest beneficiary for the Sports Basement San Ramon Store event! Our wonderful friends as Sports Basement provided​​ Exclusive discounts on tons of gear, a chance to win some of the season's hottest (coldest?) snow gear, 2-for-1 lift ticket vouchers to Palisades Tahoe, Access to reps from over 40 snow industry brands, and Beer (the Give Back Six Pack is back!)‏

B.Hope Day

November 5 & 6, 2021

With the support of our incredible donors, volunteers, and community we impacted hundreds of families by helping to fill Backpacks of Hope for each of their young warriors. Thank you to all who helped, and we hope you can join us at our next B.Hope Day in 2022!

Event Photos!


 

Peer Team CONNECTIONS event

October 23, 2021

A spooky fun' themed activity based meet up for young warriors ages 13 and under, hosted by NSF's Peer Team!

 

Finding Health Back to School Session 2

September 28, 2021

In Part 2 of this series we talked about school lunches, healthy snacks and even kidney-friendly product ideas. We were joined by certified kidney dietitian and nutritionist Kellsey from @ckdnutrition who shared some of her favorite snack products and general kidney friendly eating tips, and hear dfrom other parents and caregivers as to what their kids or teens love.

Finding Health - Kidney Friendly Guide
Finding Health - Presentation from Kellsey Reed, RDN, LDN


 

Peer Team Virtual Social

September 5, 2021

This virtual event was a social discussion between our Peer Team, young adults, and older teens 14 year + based in North America. Everyone who came got to know the team, ask questions, and hear about ways to get involved!

Finding Health Back to School Session 1

August 31, 2021

In Part 1 of this series we talked about how to advocate for your child or teen as they go back to school and need accommodations or support. We shared our 504 Plan Toolkit, heard from others who have navigated this slice of life, shared ideas, tools and tips for a smooth return to school and a successful year. Parents had the opportunity to connect with others who have kids the same age. This session was done virtually, thank you to all who joined in and discussed this topic with us!

Camp NSF 2021

July 17th, 2021

This year we went virtual! Although we would prefer to gather in person, we were excited to welcome patients and families from all over! Monday, July 12th we kicked off Camp with a 'Meet your Counselors' virtual meet up, followed by a Q&A with UCSF Nephrologist Dr. Paul Brakeman for parents. We offered virtual programming and fun all week long, and gathered for the big event on Saturday, July 17th. We provided Camper Boxes full of goodies and activities to each registered family! Camp was 100% free for all families. 

B.Hope Day

June 25th / 26th, 2021

As we strive to reach new goals in providing support this year, we are excited to have completed another Backpacks of Hope Day! Thank you to everyone who contributed to this B.Hope Day - Volunteers, Donors, Supporters, etc. we couldn't do it without you! We look forward to continue providing Backpacks of Hope to more patients worldwide to brighten their lives

Event Photos

Day on the Green

May 24, 2021

Our main attraction for 2021 was an 18 hole golf tournament, hosted at the beautiful course of Diablo Country Club. With the help of all our wonderful sponsors, attendees, donors, volunteers, supporters & EVERYONE who contributed we raised over $165,000 to support our patient programs! Thank you to each and every person who supported our 1st ever Golf Tournament, and we hope to see you soon for another Day on the Green.

Event Photos

Finding Health - The COVID Vaccine

April 22, 2021

Dr. Tom Tarro, UCSF pediatric infectious disease specialist presented on the vaccine, background, alternatives, how they have seen Covid presenting in pediatric patients and more. He was joined by co-host Dr. Paul Brakeman, one of UCSF’s top pediatric nephrologists, who answered nephrology related questions on the subject. The session finished with open Q&A. 100% free for patient families, and hosted virtually. Stay tuned for future sessions!

Peer Team Connections Spring Fun

April 17, 2021

Our Peer Team Connections got together to enjoy some Spring Fun activities and spend time connecting with one another and growing in their journey together.

Kidney Awareness Month

March 2021

March was Kidney Awareness Month! It was a wonderful opportunity to spread awareness about Nephrotic Syndrome and the importance of support for those in this journey. 

B.Hope Giving Drive

November - December 2020

Every day we find more kids battling Nephrotic Syndrome without support. Backpacks of Hope offers these families support when needed most. Each Backpack of Hope contains valuable medical supplies, comfort items and educational materials. Each one offering a personal connection to others in the same journey.

Finding Health - The Gift of Gratitude

November 7, 2020

Gratitude is not a natural ability for many of us, and can be especially hard for those with Nephrotic Syndrome. The Nephrotic Syndrome Foundation partnered with “The Gift of Being Grateful”, to provide the opportunity for young warriors battling Nephrotic Syndrome to create their own Gratitude Box!  To kick off this kid-focused session, we heard from Dr. Ryan Lazarus, an international speaker and owner of Lazarus Chiropractic Inc. who shared with us a few words on the importance of gratitude. He and his daughter Cienna, led attendees in a step by step tutorial to customize, decorate and use their own Gratitude Box!

​​NSF Peer Team Connections Meet Up

October 24, 2020

NSF Peer Connections Meet-Up and Card Making - The Nephrotic Syndrome Foundation Peer Team hosted a fall themed FUN meet-up! Join us! Participants Dressed up in their Halloween costume and we made cards for other Nephrotic Syndrome warriors to show our love and support.

Summer Splash 2020

Summer 2020

This Summer we brought back one of our favorite awareness campaigns and fundraising events - Summer Splash! Every participants contributed by cannonballing or diving into a pool, lake or other body of water in support of finding a cure for Nephrotic Syndrome. Thank you to our amazing sponsors including our Big Kahuna Sponsor Leslie's Pool Care.

Virtual Camp NSF

July 25, 2020

Although COVID-19 cancelled our in person Camp NSF, we didn't let that stop us from doing fun crafts, games and activities with our amazing campers and counselors. This year we hosted our first virtual camp with patient families from across the United States! We can't wait to see you all in person again for Camp 2021.

B.Hope Day "Round 2"

July 25, 2020

We filled over 200 Backpacks of Hope with the help of our amazing sponsors and volunteers! At our social distancing backpack stuffing event, small groups of volunteers joined us at CPC in Danville to completely clear out waitlist and provide each child who was waiting with a Backpack of Hope.

Event Photos

Dine Together

April 28, 2020

Over 100 people joined us for our first EVER Virtual Dinner Party. As a result of COVID-19 and all NSF's in person events being put on hold, Dine Together served as our fundraiser to sponsor 226 Backpacks of Hope, eliminating our waitlist! John and Noelle Micek hosted our event alongside NSF founders Andi and Tucker Callaway. CPC's Tyler Scott led us in a blessing before The Lear Family shared their brave journey with Nephrotic Syndrome.​ Thank you to all our Sponsors and Donors!

Watch the Event

B.Hope Day 2020

March 7, 2020

Over 100 incredible people came out to serve on March 7th, 2020, putting together Backpacks of Hope for 100 young warriors battling Nephrotic Syndrome, lifting up not only 100 tough young fighters, but also their families, moms, dads and brothers and sisters. We are SO grateful to all those who helped...our volunteers, Team NSF, our sponsors, donors, community partners and to those who fight this battle ever day and inspire us to do more. 

Event Photos

Game Day 2019

2019

Thank you to everyone who came out, contributed or donated in support! We could not be more proud to be a part of this amazing community. Together we raised $97,000 to allow The Nephrotic Syndrome Foundation to continue our programs in 2020! Thank you!!

Event Photos

Camp NSF 2019

Summer 2019

We rode horses, tie-dyed shirts, hiked, stargazed, swam, decorated cookies, zip-lined, did art projects, played air hockey, had campfires and movie nights and tons more. Twenty one patient families attended NSF's first ever TWO night weekend family camp, and by the time we left we were like family. 

Event Photos

Local Love 2019

April 20, 2019

Local Love 2019 featured multiple bands, eats from local restaurants, and good vibes all day long! Thank you to those who were a part of this special day. Together we raised $45,000 for NSF!

Event Photos:
Jolie James Photography
Kim Lind Photography (Password: LOVE)
Tracey Medcalfe Photography (Password: locallove04202019)

 

B.Hope 2018 Fall Giving Drive

Fall 2018

B.Hope Fall Giving Drive wrapped up with 60 Backpacks sponsored!! Thank you all for your support!

Summer Splash 2018

Summer 2018

We loved the enthusiastic jumps, dives and flops in support of all those battling this tough disease. You helped us raise SO much awareness and almost $2,500 for our cause! 
Big thanks to our sponsors who matched every jump and to all of you who donated and helped us spread the word!

NSF Day Camp & Family Picnic

August 12, 2018

Our 2018 NSF Day Camp offered games, arts and crafts, ropes course, magician, therapy dogs, horseback riding and more. Finishing off with afternoon swimming and snow cones!

Camp Video

Game Day 2018

March 25, 2018

With your help Game Day 2018 raised $85,000 and brought love and light to this important cause. Thank you all who came out to enjoy this special Sunday at the Ball Park or donated in support. 

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