Working to support families, educate our community, and fight Nephrotic Syndrome
Past Events & Photos
Level Up w/ Laurie
March 27, 2022
Thank you to all who joined us for a sweat, sip and shop in support of B.Hope! We teamed up with our B.Hope partner Beyond Active, Level Up with Laurie, Late Night Bakes (to name a few) to bring attendees a fabulously fun morning.
We hosted an outdoor, socially distant class with Laurie (10am start), mimosas, sweet treats and more. We had chair massages and energy healing...and shopping! @shopbeyondactive has the BEST activewear and wellness inspired gifts and donated 15% back to B.Hope!
Thank you so much for your love and support!
World Kidney Month
March 2022
Every March is World Kidney Month! Join Us as we raise awareness and grow our programs to support patients and families in the Nephrotic Syndrome Community.
NSF Peer Team Mindset Workshop
February 27th, 2022
NSF was honored to collaborate with life coach & kidney transplant recipient Shelby Hansen. Together we hosted a 100% Free and Virtual dedicated wellness workshop just for our Peer Team. Designed specifically for our Nephrotic Syndrome community, Shelby lead a positive, lighthearted session with tools and techniques for living your best life with chronic illness.
NSF Peer Connections - Valentines Day Virtual Meet Up
February 5th, 2022
NSF's CONNECTIONS Program is an opportunity for young Nephrotic Syndrome warriors, 13 years and younger, who have a desire to support others navigating Nephrotic Syndrome, and who would like to be part of a community for support as well. Siblings 13 years and younger, are also welcome!
NSF's CONNECTIONS Program is guided by The NSF Peer Team, a group of young adults and older teens who themselves walk the journey of life with Nephrotic Syndrome. The NSF Peer Team is here to support others battling Nephrotic Syndrome and are passionate about encouraging younger community members to get involved in the NSF community in whatever way suits them. The NSF Peer Team is here to speak with parents, share experiences with young warriors and simply be a part of a collaborative and supportive community.
At NSF's first CONNECTIONS event of the year, we did fun Valentine's related games/crafts together!
We Hope Virtual Event
January 27th at 5PM PST
We met together to discuss ways to give back and get involved with NSF as part of the We Hope fundraising program. We got to know each other as we brainstormed ideas for fundraising campaigns and spreading awareness about Nephrotic Syndrome. Several veteran fundraisers joined us to share their experiences and how they got started fundraising to support NSF! Check out our We Hope page to learn how to host an event or fundraiser yourself!
Check it out: link to the Zoom recording of the meeting
B.Hope Giving Drive 2021
November 1st - December 31st
Every day we find more kids battling Nephrotic Syndrome, until now, without support. Backpacks of Hope offers each child a backpack full of comfort items, medical supplies and educational materials. Inside is warm blanket, Swell style water bottle, Albustix, over-ear headphones, a gift for the patient and siblings, important educational information and much more. Each is a personal connection to others in the same journey.
Each year we host a B.Hope giving drive where we fundraise to support our backpacks of hope program and strive to reach even more families and bring them not only a backpack filled with valuable supplies but also a sense of support, community and hope.
We raise funding to support this program year round, check out our support page to donate!
Sports Basement SnowFest
December 5, 2021
The Nephrotic Syndrome foundation was the Snowfest beneficiary for the Sports Basement San Ramon Store event! Our wonderful friends as Sports Basement provided Exclusive discounts on tons of gear, aChance to win some of the season's hottest (coldest?) snow gear, 2-for-1 lift ticket vouchers to Palisades Tahoe, Access to reps from over 40 snow industry brands, and Beer (the Give Back Six Pack is back!)
B.Hope Day
November 5 & 6, 2021
With the support of our incredible donors, volunteers, and community we impacted hundreds of families by helping to fill Backpacks of Hope for each of their young warriors. Thank you to all who helped, and we hope you can join us at our next B.Hope Day in 2022!
Event Photos!
Peer Team CONNECTIONS event
October 23, 2021
A spooky fun' themed activity based meet up for young warriors ages 13 and under, hosted by NSF's Peer Team!
Finding Health Back to School Session 2
September 28, 2021
In Part 2 of this series we talked about school lunches, healthy snacks and even kidney-friendly product ideas. We were joined by certified kidney dietitian and nutritionist Kellsey from @ckdnutrition who shared some of her favorite snack products and general kidney friendly eating tips, and hear dfrom other parents and caregivers as to what their kids or teens love.
Finding Health - Kidney Friendly Guide
Finding Health - Presentation from Kellsey Reed, RDN, LDN
Peer Team Virtual Social
September 5, 2021
This virtual event was a social discussion between our Peer Team, young adults, and older teens 14 year + based in North America. Everyone who came got to know the team, ask questions, and hear about ways to get involved!
Finding Health Back to School Session 1
August 31, 2021
In Part 1 of this series we talked about how to advocate for your child or teen as they go back to school and need accommodations or support. We shared our 504 Plan Toolkit, heard from others who have navigated this slice of life, shared ideas, tools and tips for a smooth return to school and a successful year. Parents had the opportunity to connect with others who have kids the same age. This session was done virtually, thank you to all who joined in and discussed this topic with us!
Camp NSF 2021
July 17th, 2021
This year we went virtual! Although we would prefer to gather in person, we were excited to welcome patients and families from all over! Monday, July 12th we kicked off Camp with a 'Meet your Counselors' virtual meet up, followed by a Q&A with UCSF Nephrologist Dr. Paul Brakeman for parents. We offered virtual programming and fun all week long, and gathered for the big event on Saturday, July 17th. We provided Camper Boxes full of goodies and activities to each registered family! Camp was 100% free for all families.
B.Hope Day
June 25th / 26th, 2021
As we strive to reach new goals in providing support this year, we are excited to have completed another Backpacks of Hope Day! Thank you to everyone who contributed to this B.Hope Day - Volunteers, Donors, Supporters, etc. we couldn't do it without you! We look forward to continue providing Backpacks of Hope to more patients worldwide to brighten their lives
Day on the Green
May 24, 2021
Our main attraction for 2021 was an 18 hole golf tournament, hosted at the beautiful course of Diablo Country Club. With the help of all our wonderful sponsors, attendees, donors, volunteers, supporters & EVERYONE who contributed we raised over $165,000 to support our patient programs! Thank you to each and every person who supported our 1st ever Golf Tournament, and we hope to see you soon for another Day on the Green.
Finding Health - The COVID Vaccine
April 22, 2021
Dr. Tom Tarro, UCSF pediatric infectious disease specialist presented on the vaccine, background, alternatives, how they have seen Covid presenting in pediatric patients and more. He was joined by co-host Dr. Paul Brakeman, one of UCSF’s top pediatric nephrologists, who answered nephrology related questions on the subject. The session finished with open Q&A. 100% free for patient families, and hosted virtually. Stay tuned for future sessions!
Peer Team Connections Spring Fun
April 17, 2021
Our Peer Team Connections got together to enjoy some Spring Fun activities and spend time connecting with one another and growing in their journey together.
Kidney Awareness Month
March 2021
March was Kidney Awareness Month! It was a wonderful opportunity to spread awareness about Nephrotic Syndrome and the importance of support for those in this journey.
B.Hope Giving Drive
November - December 2020
Every day we find more kids battling Nephrotic Syndrome without support. Backpacks of Hope offers these families support when needed most. Each Backpack of Hope contains valuable medical supplies, comfort items and educational materials. Each one offering a personal connection to others in the same journey.
Finding Health - The Gift of Gratitude
November 7, 2020
Gratitude is not a natural ability for many of us, and can be especially hard for those with Nephrotic Syndrome. The Nephrotic Syndrome Foundation partnered with “The Gift of Being Grateful”, to provide the opportunity for young warriors battling Nephrotic Syndrome to create their own Gratitude Box! To kick off this kid-focused session, we heard from Dr. Ryan Lazarus, an international speaker and owner of Lazarus Chiropractic Inc. who shared with us a few words on the importance of gratitude. He and his daughter Cienna, led attendees in a step by step tutorial to customize, decorate and use their own Gratitude Box!
NSF Peer Team Connections Meet Up
October 24, 2020
NSF Peer Connections Meet-Up and Card Making - The Nephrotic Syndrome Foundation Peer Team hosted a fall themed FUN meet-up! Join us! Participants Dressed up in their Halloween costume and we made cards for other Nephrotic Syndrome warriors to show our love and support.
Summer Splash 2020
Summer 2020
This Summer we brought back one of our favorite awareness campaigns and fundraising events - Summer Splash! Every participants contributed by cannonballing or diving into a pool, lake or other body of water in support of finding a cure for Nephrotic Syndrome. Thank you to our amazing sponsors including our Big Kahuna Sponsor Leslie's Pool Care.
Virtual Camp NSF
July 25, 2020
Although COVID-19 cancelled our in person Camp NSF, we didn't let that stop us from doing fun crafts, games and activities with our amazing campers and counselors. This year we hosted our first virtual camp with patient families from across the United States! We can't wait to see you all in person again for Camp 2021.
B.Hope Day "Round 2"
July 25, 2020
We filled over 200 Backpacks of Hope with the help of our amazing sponsors and volunteers! At our social distancing backpack stuffing event, small groups of volunteers joined us at CPC in Danville to completely clear out waitlist and provide each child who was waiting with a Backpack of Hope.
Dine Together
April 28, 2020
Over 100 people joined us for our first EVER Virtual Dinner Party. As a result of COVID-19 and all NSF's in person events being put on hold, Dine Together served as our fundraiser to sponsor 226 Backpacks of Hope, eliminating our waitlist! John and Noelle Micek hosted our event alongside NSF founders Andi and Tucker Callaway. CPC's Tyler Scott led us in a blessing before The Lear Family shared their brave journey with Nephrotic Syndrome. Thank you to all our Sponsors and Donors!
B.Hope Day 2020
March 7, 2020
Over 100 incredible people came out to serve on March 7th, 2020, putting together Backpacks of Hope for 100 young warriors battling Nephrotic Syndrome, lifting up not only 100 tough young fighters, but also their families, moms, dads and brothers and sisters. We are SO grateful to all those who helped...our volunteers, Team NSF, our sponsors, donors, community partners and to those who fight this battle ever day and inspire us to do more.
Game Day 2019
2019
Thank you to everyone who came out, contributed or donated in support! We could not be more proud to be a part of this amazing community. Together we raised $97,000 to allow The Nephrotic Syndrome Foundation to continue our programs in 2020! Thank you!!
Camp NSF 2019
Summer 2019
We rode horses, tie-dyed shirts, hiked, stargazed, swam, decorated cookies, zip-lined, did art projects, played air hockey, had campfires and movie nights and tons more. Twenty one patient families attended NSF's first ever TWO night weekend family camp, and by the time we left we were like family.
Local Love 2019
April 20, 2019
Local Love 2019 featured multiple bands, eats from local restaurants, and good vibes all day long! Thank you to those who were a part of this special day. Together we raised $45,000 for NSF!
Event Photos:
Kim Lind Photography (Password: LOVE)
Tracey Medcalfe Photography (Password: locallove04202019)
B.Hope 2018 Fall Giving Drive
Fall 2018
B.Hope Fall Giving Drive wrapped up with 60 Backpacks sponsored!! Thank you all for your support!
Summer Splash 2018
Summer 2018
We loved the enthusiastic jumps, dives and flops in support of all those battling this tough disease. You helped us raise SO much awareness and almost $2,500 for our cause!
Big thanks to our sponsors who matched every jump and to all of you who donated and helped us spread the word!
NSF Day Camp & Family Picnic
August 12, 2018
Our 2018 NSF Day Camp offered games, arts and crafts, ropes course, magician, therapy dogs, horseback riding and more. Finishing off with afternoon swimming and snow cones!
Game Day 2018
March 25, 2018
With your help Game Day 2018 raised $85,000 and brought love and light to this important cause. Thank you all who came out to enjoy this special Sunday at the Ball Park or donated in support.