Finding Health: Nephrotic Syndrome 101
March 4th - Virtual
Join Dr. Paul Brakeman, UCSF Pediatric Nephrologist, and NSF as we discuss NS diagnosis, medications, treatments, labs and how to interpret and more. Open Q&A to follow. 100% FREE & virtual.
Backpacks of Hope Stuffing Event
March 22nd - 23rd in Danville, CA
Join us as we curate special Backpacks of Hope for young warriors with Nephrotic Syndrome!
Every day we find more kids battling Nephrotic Syndrome without support. Backpacks of Hope offers these families support when needed most. Each Backpack of Hope contains valuable medical supplies, comfort items and educational materials. Each one offering a personal connection to others in the same journey.
Kidney Awareness Month
Help bring awareness to your community! March is National Kidney Month—a time to raise awareness about the importance of kidney health.
Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids, cancer, and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.
Learn More or Support via Donation!
Day on the Green 2024
May 19th -20th 2024
Join us as we host our annual 18-hole golf tournament. This event features a tournament held at Diablo Country Club filled with fun and followed by an outdoor cocktail reception and awards ceremony where we continue the festivities in support of those in this battle. Plus enjoy a silent and live auction, raffle and MORE! 100% of the proceeds benefit children battling Nephrotic Syndrome and their families.
Thermometer Wrapping and Packing Event
April 27th - Danville, CA
Join us at CPC Danville as we gift wrap, decorate and prepare thermometers to be shipped to new patient families!
Through our Thermometer Program, The Nephrotic Syndrome Foundation provides a hospital-grade thermometer to patient families with a child battling Nephrotic Syndrome - a significant benefit to anyone dealing with an immunosuppressed child. Each thermometer is valued at over $300.
NSF Peer Team: CONNECTIONS
June 22nd @ 10am PT - Virtual
NSF's Connections program gives younger patients (13 and under) an opportunity to have some fun while connecting with others who walk the same path.
Camp NSF 2024 Family Meet-Up
July 22nd @ 6pm PT - Virtual
For those attending Camp NSF 2024, this virtual, mandatory Family Meet-Up is an opportunity to meet your counselors, say hello to other camp families and friends, and get important information for Camp!
While the entire family is invited, at minimum one adult family representative must attend this important gathering. Registered families, please check your email for details and Zoom link. Thanks!
Camp NSF 2024
August 2nd - 4th 2024 in Livermore, CA
Camp NSF is hosted annually by The Nephrotic Syndrome Foundation in partnership with The Taylor Family Foundation in Livermore, CA.
Camp NSF offers a chance for our patient community to gather in a safe and carefree environment for a weekend of family camp! We offer games, arts and crafts, ropes course, magician, therapy dogs, horseback riding and more...a night hike for older kids, campfires with s'mores, movie night, etc!