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Upcoming Events

Finding Health - The COVID Vaccine

Thursday April 22, 2o21 @ 5:30pm PST

Dr. Tom Tarro, UCSF pediatric infectious disease specialist will be presenting on the vaccine, background, alternatives, how they have seen Covid presenting in pediatric patients and more. He will be joined by co-host Dr. Paul Brakeman, one of UCSF’s top pediatric nephrologists, who will be there to answer nephrology related questions on the subject. The session will finish with open Q&A. 100% free for patient families, and hosted virtually. Registration will open 3/29/21. Email us at andi@nephroticsyndromefoundation.org with any questions. 

Kidney Awareness Month!


March is Kidney Awareness Month! It is a wonderful opportunity to spread awareness about Nephrotic Syndrome and the importance of support for those in this journey. We can help you with ideas! Reach out to us andi@nephroticsyndromefoundation.org to get some inspiration or ideas or just to jump start your thinking!


Saturday, April 17th @ 10am

Join the NSF Peer Team for a Spring Themed CONNECTIONS event with other young warriors. Open to all young patients 13 and under, and siblings! 100% free, offered virtually. Register or learn more here

Day on the Green

May 24th

Our main attraction for 2021 will be an 18 hole golf tournament, hosted at the beautiful course of Diablo Country Club. Join us in raising funds for our patient programs in a socially distanced, COVID-safe format! Interested? Click here for event details or email us to learn more!

B.Hope Day

Friday & Saturday

June 25th / 26th

As we strive to reach new goals in providing support this year, we are excited for our upcoming Backpacks of Hope Day in June! There are many opportunities to volunteer and be apart of this program that provides patients diagnosed with Nephrotic Syndrome a symbol of love, comfort & hope from our foundation.

Camp NSF 2021

Saturday, July 17th

We're virtual! Although we would prefer to gather in person, we are excited to welcome patients and families from all over! Monday, July 12th we will kick off Camp with a 'Cookies with your Counselors' virtual meet up, will offer virtual programming and fun all week long, and will gather for the big event on Saturday, July 17th. Camp is 100% free for all families. Registration opens April 15th! We provide Camper Boxes full of goodies and activities to each registered family! Open to US and Canada families only due to shipping logistics and costs.

Game Day 2020

We look forward

to seeing you 

in 2021

Unfortunately as a result of COVID-19 we have made the difficult decision to cancel Game Day 2020. We hope you can join us out on the field next year! If you are still looking to make a contribution to The Nephrotic Syndrome Foundation, please consider making a donation to one of our programs. Thanks!

Savanna's Summertime BBQ

Moved to 2021

Catasauqua, PA

Savanna and her family are hosting a summertime BBQ complete with a Pig Roast, Live Music, Entertainment & More! For questions or more information visit our fundraising site, or contact Christina and Oliver Sayre at cattycpl@aol.com. All proceeds directly support NSF. Sponsorship opportunities available. 

Joshua's Journey Car Show

Moved to 2021

Carlisle, PA

Please join us in support as we host our 2nd Annual Joshua's Journey Car Show to raise awareness for Nephrotic Syndrome, a rare kidney condition that affects Joshua. All of the proceeds from this important event will go to the Nephrotic Syndrome Foundation so that they can continue their mission to help kids and families affected by this awful condition. We hope you will consider donating in support!

If you are local, or would like to attend Joshua's Journey Car Show, we would love to have you! Click Here for details. For more info or to inquire about sponsorship opportunities or in-kind donations for the event, contact us at lifelovingrn@gmail.com. Sponsorship opportunities available.