The Nephrotic Syndrome Foundation strives to actively support research toward the search for a cure for Nephrotic Syndrome and it's underlying diseases, through collaboration with leading organizations in the field

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The Nephrotic Syndrome Foundation works actively to stay engaged and up to date on developments in  Nephrotic Syndrome research, current clinical trials, and related studies. Partners in this effort include the following:


Kidney Research Network

Founded by Dr. Deb Gipson at the University of Michigan, Kidney Research Network engages all parties, including patients, researchers, and industry, to accelerate research associated with Nephrotic Syndrome and improve treatment. To find out more about Kidney Research Network (KRN) go to


About Kidney Research Network:
The Kidney Research Network is a collaborative organization of patients, clinicians, and scientists focused on improving evidence-based treatment options and outcomes for patients with kidney disease. Supported by a Patient Advisory Board, the Network consists of six cores and employs strategic partnerships to advance its mission. The Clinical Trials Network and Trials Consulting Core along with full-service Data Analysis and Coordinating Center provides a unique, high impact approach to clinical trial development and execution and leverages the rich resources of the Network Data Warehouse and Endpoints and Outcomes Consortium. 

News from KRN! 

The KRN has recently hit a really exciting milestone as one of the trials they are closely partnered with successfully completed enrollment.The FIRSTx trial in FSGS is investigating a new medication being developed as a possible alternative to steroids. Completion of enrollment is a critical step that is often the barrier to progress in clinical trials. More on this trial and specific details of the research involved can be found at