Working to support families, educate our community, and fight Nephrotic Syndrome
HEALTHY AT HOME
NSF's Healthy at Home program provides practical tools to support families caring for a child with Nephrotic Syndrome. It is designed to bring critical at-home monitoring tools to families if / when insurance is not able to provide these necessary tools.
NSF is proud to announce the launch of our first 100 Healthy at Home kits in November 2026.
Each NSF Healthy at Home kit includes:
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Upper arm blood pressure monitor with pediatric or adult cuff options
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Digital weight scale
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Urine protein test strips
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Helpful tracking and educational materials including Nephrotic Syndrome info and NSF resources
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Guidance on how to take a BP reading and best practices on urine test analysis
We look forward to bringing these resources to our patient families and to helping ensure and support the health of every family with a child battling Nephrotic Syndrome.
Healthy at Home is available to patients ages 0–18 (in some cases up to age 25) diagnosed with Nephrotic Syndrome and living in the United States. Each family may receive one kit during their lifetime.
Please reach out with any questions to
dana@nephroticsyndromefoundation.org.
SPECIAL THANKS
Special thanks to Travere Therapeutics and Dr. Dorey Glenn for the generous support and patient-focused insight that allowed us to bring this program to life.
TOOLS & RESOURCES
Below are document and video resources on how to property use your Healthy at Home kit.
Families should have their child’s medical team review the items upon arrival and confirm that the equipment and cuff are appropriate before use. These supplies support the monitoring plan provided by your child’s medical team and do not replace medical advice.
How to: Check Blood Pressure - Blood pressure cuffs are not one size fits all. Arm circumference and proper fit matter when selecting a cuff.
How to: Check Blood Pressure
Learn how to properly measure blood pressure in children to ensure accurate and reliable readings. This video demonstrates the correct technique and key considerations for obtaining accurate pediatric blood pressure measurements.
How to: Use a Urine Dipstick
Learn how to use a urine dipstick to test for protein in a urine sample, including proper technique and key steps to ensure accurate and reliable results.
